End of Life Care manager Archives ⋆ Cathy Cress

How Does Atul Gawande View Quality of Life in Dying ?

July 3, 2018

Atul Gawande ‘s acclaimed book, “Being Mortal“ opened our eyes to the medical way of death. He showed millions of readers how the quality of life and human interaction while dying trump the number of years gained through questionable painful procedures and dying in an institution.

He tells us that “our ultimate, goal, after, is not a good death but a good life to the very end’

GCM Nina Herndon brings you that same quality of life message- about dying –where an elder can still live the end life with joy. Her new chapter “Supporting Clients’ Quality of Life: Drawing on Community, Informal Networks, and Care Manager Creativity” in the Handbook of Geriatric Care Management 4th edition is a geriatric care management Nina has devoted her career to giving elders a care plan for a happy life and a happy life to the very end.

She now has a new product Joyfull Moments out an individualized Activity Kit you can order and help an older client reclaim joy through Quality of Life activities designed by Nina’s Hummingbird Program.

Bringing joy in the here and now of dying can be done through using quality of life tools- Spiritual, emotional, intellectual, creative and physical quality of life. Increasing the spiritual quality of life can mean for a person is dying and wishes to return to a spiritual group she knew before, connecting them to the faith they are familiar with. Even homebound clients can have visits from members of a religious community or a prelate. They can have hymns sung, prayers said or whatever religious ritual their spiritual group follows, like communion, at home. Care providers can be trained to engage them by reading religious texts or playing hymns.

Spirituality can be the environment. I once had a client who was in a nursing home dying of cancer and wanted to go home to die with hospice and 24-hour care. His spirituality was the environment and he had been a lead volunteer to build a trail in Santa Clara California from Los Gatos up the steep winding highway 17 over the Santa Cruz mountains to the Lexington Reservoir. He had no family so the care manager asked the volunteers he had worked with, if they would visit him at his home. They happily agreed and 300 volunteers took shifts, 24 hours a day to sit with him reminisce, tell stories and sing while he died over several weeks. This is what joy that bringing a spiritual quality of life can offer in dying.

What Does a Care Manager Do When a Client Asks For Help with Assisted Suicide?

August 9, 2017

The terminal phase of any life-threatening illness is the time between diagnosis and the final decline when no cure or extension of life is in the offing. The individual confronts progressive decline and deterioration. Death is imminent. The care manager has a role.

The focus of doctors and patients now changes from attempting to cure the illness or prolong life to trying to provide relief from pain and to comfort the sufferer. Religious concerns such as what happens after someone passes away or how to handle the suffering at the end of life or how to give comfort to family members are the focus during this time as well as trying to tie up any loose ends.

But what happens, when in the terminal phase the client asks you, the geriatric care manager, about the right to die in your state. In California where In June 2016, our state became the fourth in the nation to allow medical aid in dying for patients suffering from terminal illness, they do have a right to discuss this with their physician. Four other states have passed this law including Oregon, 20 years ago.

In an article in yesterday’s New York Times a physician in Oakland, Ca discussed the ethical dilemma that physicians face. She called for more, guidance and training for physicians in solving this dilemma themselves but also said the law was working well.

For geriatric care managers.

This speaks to more directions for care managers who face this request and it’s ensuing dilemma. We cannot make any of these decisions but this adds another step for us if the clients ask us to help them with physician assisted suicide. So we need protocols and training as well.

I am adding new protocols ,about requests for physician assisted suicide, to the product Care managers Working With Death and Dying in My Geriatric Care Management Operations Manual, for those who want to add a death and dying service or End of Life to their Menu of Services

Can a Geriatric Care Manager or Social Worker Be a Midwife for a Good Death ?

June 24, 2017

Atul Gawande’s breakthrough book, Being Mortal tells us the ultimate goal, after all, is not a good death but a good life to the very end. Elizabeth Kubla- Ross tells us the death is really in parts called five stages.

A Care Manager or Geriatric Social worker can be a midwife through these five stages to a good death, reaching towards joining the ultimate midwife team, hospice.

The Acceptance phase of death occurs when people finally are able to cope with the mental, social, physical, religious and financial effects of their disease, a heavy load In the disease process and acceptance process, this is the period of time after a medical procedure such as chemotherapy, radiation or surgery. The client’s response to treatment is being monitored. Recovery does not always mean remission, but instead, it is the ability to accept and deal with the struggles of their illness.

A Story About the acceptance phase Mr. Murphy

William accepted his coming death while in the hospital. He had 4 physicians’ who were treating him aggressively for renal failure with dialysis. He was 93 and refused to sign a DNR. The doctors discovered what they thought might be a tumor. However, they were afraid the biopsy procedure would be too radical for his age. So they kept up the dialysis.

The care manager appealed to the nurses for help when the physicians would not intervene. A nun appeared – it was a Catholic hospital- and said, ” the nurses called me to go around this problem. Talk to the head Dr. about ordering palliative care.” The Care Manager did.

Sure enough, after the care manager talked to him that physician ordered palliative care. Then one by one one the 4 physicians came to Bill’s bedside and talked softly, asking him to accept that he may have cancer and the biopsy could not be done. The last, a gentle urologist, held his hand and talked of letting go and accepting he would die. He agreed to stop the dialysis.

Bill accepted his death reluctantly wanted to live to watch his 3 great grandchildren grow. The urologist ordered palliative care and Bill changed the DNR with the help of his son. Hospice met with the family and all agreed to move William to the son’s home with 24-hour care and hospice to die.

Gwendolyn LAZO Harris MA, CT, Seniors at Home, San Francisco and Diane LeVan MA both highly expert care managers, created a seminal chapter “Palliative Care and End of Life Care Manager ” in my book Care Manager’s Working With the Aging Family

How Can a Care Manager Bring Joy to a Dying Client ?

June 22, 2017

A care manager can bring joy in the terminal phase of dying and give a good life to the very end.Here is a wonderful example

Bill died at the home of his son after he had accepted that he was to die of liver failure. After coming to terms with his death, he and his family, sons, and grandchildren were able to say the goodbyes and offer the unconditional love that they had been fearful to express before his acceptance. A feeling of light joy permeated his room, a family room overlooking the garden, where his hospital bed was set up. Great grandchildren brought pictures, marveled at “grandpa grandpa “ high up in a hospital bed.

His son put a headphone with a mike on and William could hear and speak, as he had not in years. It was like the wonderful film and concept Alive Inside. Hearing was a gift that gave him such joy. in his last weeks of life.

His 24-hour caregivers were gifted loving care providers from a GCM agency Livhome .The 24-hour shifts included a nurse of 18 years from Central America and a man finishing his Ph.D. from the Congo. They cared for him with great warmth, so his family could just be his family, relaxing in their love and surrounding him, as if in a circle, that swirled with 4 generations, going every which way while he watched, really loved and melted into his last stage. They ate meals, chitchatted and welcomed new family coming in to see William, as he remained in the center in his hospital bed, the fulcrum of the gathering.

The geriatric care manager, GCM Mary Brennan, from Livhome , a seasoned ,powerful and so kind LCSW, adjusted here and there, with care providers, family needs, Bill’s needs and followed the guidance of Hospice, who were slowly increasing the pain meds, and supporting his heath and medical care needs in death. The geriatric care management agency worked as a partner supplying 24 care and support for the family.

Bill was able to have again, a magical care provider from Livhome, who had been with him for almost two years and was so at the end.

You are only as strong as your weakest link- those are the care providers. These people were the raft that floated Bill up while the family, offered love and hospice provided medical and end of life support. Together they buoyed Bill into his last stage of dying, knowing that his family was the fabric of every step he took toward forward towards death. They gave him that good life till the very end.

Can You Give a Good Death without” Rage, Rage Against the Dying of the Light”?

June 20, 2017

Dylan’s Thomas warns us in his poem

Do not go gentle into that good night,
Old age should burn and rave at close of day;
Rage, rage against the dying of the light.

But today a care manager or geriatric social worker can help an older client go gentle into that good night, they do not have to burn and rage at the close of their day because you will be giving them as Atul Gawande suggest – a good death – not a cold terrifying dying of the light.

The terminal phase of any life-threatening illness is the time between diagnosis and the final decline when no cure or extension of life is in the offing. The individual confronts progressive decline and deterioration. Death is imminent. The care manager has a role.

Care Manager tasks:

Make referral to hospice if family has not already reached out

Partner with hospice and work under them

Monitor anticipatory grief needs

Communicate that this is the end (and time to say goodbye)

Assess spiritual needs and contact the appropriate religious spiritual counselors to provide comfort and healing.

Encourage family members to say The Four Things That Matter Most “Please forgive me”, “I forgive you”, “Thank you”, and “I love you”.

Assess the need for paid caregivers to help the family or help family members share round the clock care among family and friends

Support the family members in their need to

grieve and have respite by continuing to assess for overload and burn out with a caregiver assessment tool

Prepare family for active phase of dying which can be loud and disturbing to someone who is not aware of what will occur

How Does Atul Gawande View Quality of Life in Dying ?

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