Death and Dying Care Management Archives ⋆ Cathy Cress

How Can a Care Manager Help Elder Die Without a Will , as Aretha Franklin Just Did?

September 4, 2018

Aretha Frankin Died without a will last week. Most of us have heard this. According to her lawyer, she was aware she needed to take care of this but ” never got around to it”. This leaves her estate liable for potentially millions of dollars of taxes and attorneys fees and a drawn-out timeline for her 4 sons to inherit the proceeds from her estate.

Could a really good care manager have convinced Ms. Frankilin to ” get around to it” . She was, as many have said, ” a force of nature” and a woman who would be hard to sway. But care managers specialize in working with VIP clients and the rich and famous, who are often highly difficult to work with, so she might have convinced that she needed to work with her attorney to this to protect her family and her estate.

But we will never know.

However, care managers can specialize in End of Life care and one of their jobs is to make sure their client has all their legal documents

Once the terminal diagnosis is known with an elderly client, the care manager who has added “end of life services” to their agency, is often the one who will initiate and guide advance care planning discussions. As difficult as these discussions may be, the burden on the family is significantly lessened if decisions about advance care planning are made before the client’s condition worsens.

Hopefully, this has already been done but many people put it off for fear of death. A recent study found that less than 50% of severely or terminally ill patients had an advance directive in their medical record.

Advance directives are legal documents that allow clients to make decisions about their health care and finances in advance of when they are not mentally or physically able to do so. These documents which must be signed, dated and witnessed naming another person to make decisions for you.

Your job as a care manager is the make sure the dying client has these documents:

A durable power for attorney for healthcare
A living will
A do not resuscitate order DNR (efforts to restart the heart after it has stopped

If the client does not have these legal documents and wishes to create them, the Geriatric Care Manager will suggest that the documents be put in place with the oversight and consultation of an elder law attorney

Care Managers play a big role in end of life issues. They are their navigators through all five stages of dying, many times long before palliative care or hospice are called. Often GCM’s can help the family and client to bring in hospice or palliative care.

The final passage through life can emotionally charged. If the family is following a long labyrinth to the end, the blind alleys may be blocked by cultural, religious, and moral beliefs. Care managers can find an opening through this maze. Money, family dynamics, and fear of dying can all explode a fraught crisis of care in dying. When the important end of life decisions need to be made, like Ms. Franklin’s will, the stress of the responsibility and the seriousness of the situation can break a wave of distress fear and anxiety over the “ whole family system” the dying elder. The geriatric care manager specializes in this whole family system.

Proactive discussions and legal planning can help to reduce some of the potential pitfalls. Good legal guidance can also help clients like Aretha Franklin make better decisions, like making a will or a trust, and saving her family from adding to the burden of her death.

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How Does Atul Gawande View Quality of Life in Dying ?

July 3, 2018

Atul Gawande ‘s acclaimed book, “Being Mortal“ opened our eyes to the medical way of death. He showed millions of readers how the quality of life and human interaction while dying trump the number of years gained through questionable painful procedures and dying in an institution.

He tells us that “our ultimate, goal, after, is not a good death but a good life to the very end’

GCM Nina Herndon brings you that same quality of life message- about dying –where an elder can still live the end life with joy. Her new chapter “Supporting Clients’ Quality of Life: Drawing on Community, Informal Networks, and Care Manager Creativity” in the Handbook of Geriatric Care Management 4th edition is a geriatric care management Nina has devoted her career to giving elders a care plan for a happy life and a happy life to the very end.

She now has a new product Joyfull Moments out an individualized Activity Kit you can order and help an older client reclaim joy through Quality of Life activities designed by Nina’s Hummingbird Program.

Bringing joy in the here and now of dying can be done through using quality of life tools- Spiritual, emotional, intellectual, creative and physical quality of life. Increasing the spiritual quality of life can mean for a person is dying and wishes to return to a spiritual group she knew before, connecting them to the faith they are familiar with. Even homebound clients can have visits from members of a religious community or a prelate. They can have hymns sung, prayers said or whatever religious ritual their spiritual group follows, like communion, at home. Care providers can be trained to engage them by reading religious texts or playing hymns.

Spirituality can be the environment. I once had a client who was in a nursing home dying of cancer and wanted to go home to die with hospice and 24-hour care. His spirituality was the environment and he had been a lead volunteer to build a trail in Santa Clara California from Los Gatos up the steep winding highway 17 over the Santa Cruz mountains to the Lexington Reservoir. He had no family so the care manager asked the volunteers he had worked with, if they would visit him at his home. They happily agreed and 300 volunteers took shifts, 24 hours a day to sit with him reminisce, tell stories and sing while he died over several weeks. This is what joy that bringing a spiritual quality of life can offer in dying.

What Does a Care Manager Do When a Client Asks For Help with Assisted Suicide?

August 9, 2017

The terminal phase of any life-threatening illness is the time between diagnosis and the final decline when no cure or extension of life is in the offing. The individual confronts progressive decline and deterioration. Death is imminent. The care manager has a role.

The focus of doctors and patients now changes from attempting to cure the illness or prolong life to trying to provide relief from pain and to comfort the sufferer. Religious concerns such as what happens after someone passes away or how to handle the suffering at the end of life or how to give comfort to family members are the focus during this time as well as trying to tie up any loose ends.

But what happens, when in the terminal phase the client asks you, the geriatric care manager, about the right to die in your state. In California where In June 2016, our state became the fourth in the nation to allow medical aid in dying for patients suffering from terminal illness, they do have a right to discuss this with their physician. Four other states have passed this law including Oregon, 20 years ago.

In an article in yesterday’s New York Times a physician in Oakland, Ca discussed the ethical dilemma that physicians face. She called for more, guidance and training for physicians in solving this dilemma themselves but also said the law was working well.

For geriatric care managers.

This speaks to more directions for care managers who face this request and it’s ensuing dilemma. We cannot make any of these decisions but this adds another step for us if the clients ask us to help them with physician assisted suicide. So we need protocols and training as well.

I am adding new protocols ,about requests for physician assisted suicide, to the product Care managers Working With Death and Dying in My Geriatric Care Management Operations Manual, for those who want to add a death and dying service or End of Life to their Menu of Services

Can a Geriatric Care Manager or Social Worker Be a Midwife for a Good Death ?

June 24, 2017

Atul Gawande’s breakthrough book, Being Mortal tells us the ultimate goal, after all, is not a good death but a good life to the very end. Elizabeth Kubla- Ross tells us the death is really in parts called five stages.

A Care Manager or Geriatric Social worker can be a midwife through these five stages to a good death, reaching towards joining the ultimate midwife team, hospice.

The Acceptance phase of death occurs when people finally are able to cope with the mental, social, physical, religious and financial effects of their disease, a heavy load In the disease process and acceptance process, this is the period of time after a medical procedure such as chemotherapy, radiation or surgery. The client’s response to treatment is being monitored. Recovery does not always mean remission, but instead, it is the ability to accept and deal with the struggles of their illness.

A Story About the acceptance phase Mr. Murphy

William accepted his coming death while in the hospital. He had 4 physicians’ who were treating him aggressively for renal failure with dialysis. He was 93 and refused to sign a DNR. The doctors discovered what they thought might be a tumor. However, they were afraid the biopsy procedure would be too radical for his age. So they kept up the dialysis.

The care manager appealed to the nurses for help when the physicians would not intervene. A nun appeared – it was a Catholic hospital- and said, ” the nurses called me to go around this problem. Talk to the head Dr. about ordering palliative care.” The Care Manager did.

Sure enough, after the care manager talked to him that physician ordered palliative care. Then one by one one the 4 physicians came to Bill’s bedside and talked softly, asking him to accept that he may have cancer and the biopsy could not be done. The last, a gentle urologist, held his hand and talked of letting go and accepting he would die. He agreed to stop the dialysis.

Bill accepted his death reluctantly wanted to live to watch his 3 great grandchildren grow. The urologist ordered palliative care and Bill changed the DNR with the help of his son. Hospice met with the family and all agreed to move William to the son’s home with 24-hour care and hospice to die.

Gwendolyn LAZO Harris MA, CT, Seniors at Home, San Francisco and Diane LeVan MA both highly expert care managers, created a seminal chapter “Palliative Care and End of Life Care Manager ” in my book Care Manager’s Working With the Aging Family

How Can a Care Manager Bring Joy to a Dying Client ?

June 22, 2017

A care manager can bring joy in the terminal phase of dying and give a good life to the very end.Here is a wonderful example

Bill died at the home of his son after he had accepted that he was to die of liver failure. After coming to terms with his death, he and his family, sons, and grandchildren were able to say the goodbyes and offer the unconditional love that they had been fearful to express before his acceptance. A feeling of light joy permeated his room, a family room overlooking the garden, where his hospital bed was set up. Great grandchildren brought pictures, marveled at “grandpa grandpa “ high up in a hospital bed.

His son put a headphone with a mike on and William could hear and speak, as he had not in years. It was like the wonderful film and concept Alive Inside. Hearing was a gift that gave him such joy. in his last weeks of life.

His 24-hour caregivers were gifted loving care providers from a GCM agency Livhome .The 24-hour shifts included a nurse of 18 years from Central America and a man finishing his Ph.D. from the Congo. They cared for him with great warmth, so his family could just be his family, relaxing in their love and surrounding him, as if in a circle, that swirled with 4 generations, going every which way while he watched, really loved and melted into his last stage. They ate meals, chitchatted and welcomed new family coming in to see William, as he remained in the center in his hospital bed, the fulcrum of the gathering.

The geriatric care manager, GCM Mary Brennan, from Livhome , a seasoned ,powerful and so kind LCSW, adjusted here and there, with care providers, family needs, Bill’s needs and followed the guidance of Hospice, who were slowly increasing the pain meds, and supporting his heath and medical care needs in death. The geriatric care management agency worked as a partner supplying 24 care and support for the family.

Bill was able to have again, a magical care provider from Livhome, who had been with him for almost two years and was so at the end.

You are only as strong as your weakest link- those are the care providers. These people were the raft that floated Bill up while the family, offered love and hospice provided medical and end of life support. Together they buoyed Bill into his last stage of dying, knowing that his family was the fabric of every step he took toward forward towards death. They gave him that good life till the very end.

How Can a Care Manager Help Elder Die Without a Will , as Aretha Franklin Just Did?

How Does Atul Gawande View Quality of Life in Dying ?

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